Evan lost his fight. The disease was just too devastating for him. We are beyond ourselves with sadness. I didn't know that there could ever be anything so terrible as this. I am sick about it. Just ill.
Thank you all so much for your kind thoughts and prayers. And please do continue to think of my brother Justin, his wife Pam and their baby Duncan while they try to navigate this life without their precious little boy.
We are forever grateful for the time we had with Evan and heartbroken that we couldn't have him longer. We will always be sad, even angry, for what should have been, what could have been but can never be. We will think of him everyday and never, ever forget the joy and love his being here has given us.
I can only say to you that life is the most amazing gift. Do everything you can with the one you have been blessed with-- enjoy it and relish in it. But most importantly, be there for the people you love. Love them as much as you possibly can and just live in every moment you have with them.